The Louisiana Hemophilia Foundation (LHF) respects the privacy of every individual who visits our Web site, www.louisianahemophilia.org. This notice explains our online information practices, and to make it easy to find, links to it are posted conspicuously throughout the Web sites. Additionally, each page that requests personally identifiable information reminds you of the importance of your privacy and provides a link to the privacy policy. By visiting the Web sites, you accept the practices described in this notice.

Information Collection and Use
LHF is the sole owner of the information collected on this site. We will not sell or share your information to others outside of LHF.

LHF collects data from visitors to the site via various registration forms. Completion of any of these forms is optional. The information that is collected via the form is entered into the LHF database. The visitor will be placed on a list to receive LHF email communications (medical advisories, notices of importance to the bleeding disorders community, and others), as well as occasional communications by regular mail. Visitors who do not wish to receive communications from

LHF have the opportunity to opt out at any time. Form completion also allows visitors to register online for specific events, make donations online to LHF, and either join LHF or renew membership.

At no time is the personal information collected from a visitor shared with any individual, company, sponsor, vendor, organization, or other entity outside of LHF.

Links
LHF's Web sites include links to other online resources. LHF is not responsible for the privacy practices or information on other sites. We encourage our visitors to read the privacy statements of every Web site they visit.

Updating Personal Information
Registered users can update their own personal information by logging in with their user ID and password. Questions or problems concerning personal information updates can be addressed to an LHF database representative by sending email to lahemophilia@etigers.net or calling 800-749-1680 toll free or 225-291-1675 if you are in the Baton Rouge area.

Notification of Changes
Any changes to this privacy policy will be posted to the homepages of our Web sites.