March
29, 2004
CDC Issues New Hepatitis C Resource
March
16, 2004
USDA to Expand Testing For Mad Cow Disease
March
16, 2004
2004 Washington Days Program A Success
March
10, 2004
Pennsylvania Sues Drug Makers
March
9, 2004
2004 Washington Day Materials Available
March
1, 2004
Clotting Factor Classified As Sole Source Drugs
February 27, 2004
NHF Achieves Restoration of Medicare Factor Reimbursement
February 27, 2004
CMS Urges Programs for Disease Management in Which Costs are Lowered
February 25, 2004
Pharmacy Benefit Manager Agrees to Disclose Rebates
February 20, 2004
New Leadership to Oversee Latest Medicare and Medicaid Expansion
February 19, 2004
NHF Lends Support at Hepatitis C Advocacy Briefings
February 6, 2004
American Red Cross Issued Second Adverse Determination
February 4, 2004
Hemophilia Community Represented on New HHS Advisory Committee
February 2, 2004
Fiscal Year 2005 Budget
February 1, 2004
Upcoming FDA Meeting to Address CJD and BSE Findings
January 23, 2004
Omnibus Appropriations Bill Helps CDC and NIH
January 14, 2004
IOM Makes Recommendations on Covering the Uninsured
January
8, 2004
DIMA Implementation Affects Clotting Factor Reimbursement: Hospital
Outpatient Reimbursement
January 7, 2004
DIMA Implementation Affects Clotting Factor Reimbursement: Part B Drug
Changes
November 7, 2003
2004 HOPPS Payment Cuts Overturned
October 29, 2003
Congressional Resolution on Women's Bleeding Disorders Introduced
October 29 , 2003
Talking Points for Letters to Congress Urging Support for a Congressional
Resolution to Recognize Women's Bleeding Disorders
October 15, 2003
NHF Responds to Draft AWP Revisions
October 14, 2003
Genetic Discrimination Legislation Passed by Senate
October 8, 2003
FDA Plans Workshop on Factor VIII Inhibitors
October 7, 2003
Independent Pharmacies Sue PBMs
October 6, 2003
NHF Responds to Proposed Hospital Outpatient Payment Rates
October 5, 2003
California Governor Signs Mandated Coverage Legislation
October
4, 2003
Senate Approves Family Opportunity Act
October 3, 2003
CMS Releases 2004 Proposed Hospital Outpatient Rule
September 30, 2003
Census Finds Many Lack Health Insurance
September 26, 2003
NIH Roadmap for Medical Research
September 24, 2003
NHF Solicits Response on State Advocacy
September 18, 2003
FDA’S Blood Products Advisory Committee Continues Discussion on West Nile
Virus
August 16, 2003
NHLBI Director Lenfant Announces Retirement
August 15, 2003
CMS Ussues Draft Notice on AWP Revisions
August 15, 2003
OIG Releases Report on HTCS
August 14, 2003
Minnesota Law Ensures People with Hemophilia Will Get Drugs Without Wait
August 04, 2003
HOPPS Provisions
August 03, 2003
AWP Revisions
August 02, 2003
Conference Begins on Medicare Drug Bill
July
31, 2003
House and Senate Appropriations Bills Move Forward
July
11, 2003
Report Indicates AIDS Death Rate in the U.S. Could Be Reduced by 50% with
Passage and Implementation of the Early Treatment for HIV Act
July
9, 2003
HHS Releases Special Medicaid Funding
July
8, 2003
Revisions to AWP
July
7, 2003
Congressional Action on Medicare Prescription Drugs Could Effect
Reimbursement for Clotting Factor
May 12,
2003
HHS To Award $80 Million to States to Offset Costs of Insurance for
Residents Too Sick for Conventional Coverage
May 8,
2003
Advocacy Update: Project Red Flag Briefing
Held in Washington DC
May
1, 2003
Advocacy Update: NHF Broadening Efforts to Include State-Based Advocacy
November 18, 2002
HOPPS UPDATE: Centers for Medicare and Medicaid Services Meet NHF Demands on
New Rules for Outpatient Reimbursements
November 15, 2002
White House Announces Signing of Rare Diseases Legislation
October 16, 2002
Ricky Ray Update
June
10, 2002
Last Chance to Comment on SSA Guidelines
April
25, 2002
SSA Reopens Comment Period for Rules Changes on Qualifying for Disability
March 20, 2002
Ricky Ray Tax Tips
February 5, 2002
NHF Meets with FDA to Demand Better Communications
July 25, 2001
Ricky Ray Hemophilia Relief Fund Brochures Now Available; Brochures
Available in Both English and Spanish
July
11, 2001
Genetics Non-Discrimination Protections Urgently Needed
NHF submits statement for the Record to the House Commerce Subcommittee on
Commerce, Trade, and Consumer Protections
April 23, 2001
Click here
to read the text to HR 602:
The Genetic Nondiscrimination in Health Insurance and Employment Act
NHF has endorsed the passage of this legislation
March 7
, 2001
NHF Legislative Report
February 21, 2001
HTC ACCESS
NHF strongly encourages Congress to enact a meaningful Patient’s Bill of
Rights, and to ensure that any final legislation provides direct access to
the Federally authorized hemophilia treatment center network for persons
with hemophilia.
February 21, 2001
NHF OPPOSES LIFETIME INSURANCE CAPS
NHF supports the elimination of lifetime insurance caps. For vulnerable
persons and persons with chronic disorders such as hemophilia, lifetime caps
pose a serious threat.
February
9, 2001
NHF Response to Proposed Guidelines on Adverse Event Reporting for Gene
Therapy |
